Sidney
Active member
- Joined
- Jan 9, 2016
- Messages
- 98
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- LO
- City
- London
Hi. I realise I have posted a lot and asked a lot of questions so apologies.
You have been so kind to answer. It is sincerely appreciated and I haven't been back for six months because I wanted to resist bothering you.
I am however still in diagnostic limbo after 2 and a half years. I stated that sensory/motor/autonomic polyneuropathy was the latest diagnosis but I keep getting asked back for tests as the neuros aren't sure .To be clear I don't request these tests.
My latest Emg has +2 fibrillations and and psw in the calves. This has been consistent for about 18 months.
My question and this may be naive is can you have this level of denervation and it not be als?
I notice when you counsel about als that you always ask about psw and fibs.
Also 'clean emg equals no als'.
Mine obviously is consistently 'dirty'.
Still have 24 fasics ,tendonopathy,thinning of leg and arm muscles, breathing problems at night which are probably apnoea..
Positives are no clinical weakness ,no babinski and neuros say that because denervation hasn't gone above calf level this is a positive..
Can I politely ask you for your observations particularly on the emg results?.
I do understand your frustrations at anxiety driven posts on this forum.
I am way past that and just tired of the limbo.
Thanks in hopeful anticipation.
Sid.
You have been so kind to answer. It is sincerely appreciated and I haven't been back for six months because I wanted to resist bothering you.
I am however still in diagnostic limbo after 2 and a half years. I stated that sensory/motor/autonomic polyneuropathy was the latest diagnosis but I keep getting asked back for tests as the neuros aren't sure .To be clear I don't request these tests.
My latest Emg has +2 fibrillations and and psw in the calves. This has been consistent for about 18 months.
My question and this may be naive is can you have this level of denervation and it not be als?
I notice when you counsel about als that you always ask about psw and fibs.
Also 'clean emg equals no als'.
Mine obviously is consistently 'dirty'.
Still have 24 fasics ,tendonopathy,thinning of leg and arm muscles, breathing problems at night which are probably apnoea..
Positives are no clinical weakness ,no babinski and neuros say that because denervation hasn't gone above calf level this is a positive..
Can I politely ask you for your observations particularly on the emg results?.
I do understand your frustrations at anxiety driven posts on this forum.
I am way past that and just tired of the limbo.
Thanks in hopeful anticipation.
Sid.