OutlanderALS
Member
- Joined
- Feb 7, 2018
- Messages
- 27
- Reason
- PALS
- Diagnosis
- 10/2017
- Country
- US
- State
- GA
- City
- Roswell
(Still trying to learn how to move around this site, so I hope my comments are in the correct forum.)
I want to say Hello and how much I appreciate the depth of knowledge and the forthrightness that I read posted here. My diagnosis was last October, 2017, after spending about 18 months chasing down causes of symptoms. I may still be in shock and/or denial; I don't know anymore.
My diagnosis was confirmed by three different neurologists, innumerable spinal mri's, brain mri's, breathing and swallowing tests, blood tests and emg's beyond tolerance. I was sure that eventually someone would identify a different, treatable problem. Still waiting for that, even if it is futile waiting. I will be undergoing another full-on evaluation at the ALS Clinic at Augusta Medical College, Augusta, Georgia, in March.
Symptoms currently are no movement in right foot, atrophy of right leg, coughing and choking, aspirational pneumonia episode, and profound weakness. But still...
I guess I'm wondering if this disbelief makes any sense, and how in the world can I know what to expect from now on?
I want to say Hello and how much I appreciate the depth of knowledge and the forthrightness that I read posted here. My diagnosis was last October, 2017, after spending about 18 months chasing down causes of symptoms. I may still be in shock and/or denial; I don't know anymore.
My diagnosis was confirmed by three different neurologists, innumerable spinal mri's, brain mri's, breathing and swallowing tests, blood tests and emg's beyond tolerance. I was sure that eventually someone would identify a different, treatable problem. Still waiting for that, even if it is futile waiting. I will be undergoing another full-on evaluation at the ALS Clinic at Augusta Medical College, Augusta, Georgia, in March.
Symptoms currently are no movement in right foot, atrophy of right leg, coughing and choking, aspirational pneumonia episode, and profound weakness. But still...
I guess I'm wondering if this disbelief makes any sense, and how in the world can I know what to expect from now on?