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Old 02-13-2018, 10:57 AM #1 (permalink)
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SNicole SNicole is offline
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Join Date: 2018
City: Austin
State: Tx
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 12
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SNicole SNicole is offline
New Member
SNicole's Avatar
Join Date: 2018
City: Austin
State: Tx
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 12
SNicole is on a distinguished road
Default Genuinely Concerned

Hello!

So my concern started about two months ago when I was 5 minutes in exercise and suddenly my arms became heavy to the point it was hard for me to even pick up my water .(and yes I ate well that day and was hydrated). This has happened before and I had ignored it, but this time I felt like I had absolutely no control over my body which is what scared me the most, i even sat out the rest of the hour, feeling completely frozen. I am healthy and go to this class (Lagree Fitness) at least 5 days a week so theres most definitely not a physical problem. ALS didnt even cross my mind at this point though, I have had previous symptoms of MS so I went to the ER and they did and MRI and no lesions appeared.

Skipping to one month later , my speech is getting so frustrating. I mess up constantly with my “s,ch,th, etc). Ive actually started to purposely slow down my speech when talking to others to make sure I hit all of my consanants correctly. I know numbness typically isnt described in als but my cheeks and upper lip have felt so tight (im assuming this is what botox feels like). This tightness started before my speech issues began. I keep wanting to think that this is all in my head , but every time I try to forget about this issue, it appears again, so now I am truly worried. I believe in ‘mind over matter’ but its not working this time. One question that I do have is , once I mess up a phrase, typically I can think it over and say it again correctly, so should I be worried? I am younger than 30 but the non-stop symptoms do bother me, even with Bulbar being as rare as it is.

And thank you beforehand, I have a neuro appt set up, but I also would like to hear from personal experience if anything Im saying is familiar .

Respectfully,

Shelby

Last edited by SNicole : 02-13-2018 at 11:12 AM
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