Yvme
Active member
- Joined
- Jul 18, 2014
- Messages
- 30
- Reason
- Learn about ALS
- Country
- CRO
- State
- Croatia
- City
- Zagreb
Hello,
I promised I will not post until I get checked with my doctor. I still have an appointment with rheumatologist but it will be in April.
So as the title says, i’ve been to als neurologist in Slovenia. The doctor seems really nice and well educated, I’m a bit calmer now.
He did complete neuro exam on me. He noticed “rather brisk tendon reflexes” and my plantar response was very difficult to elict, but at the end he managed to elict plantar flexor response. He graded my strenght 5/5. He didn’t noticed not one twitch even he was looking really hard for it.
My body is trying really hard to make me look foolish around doctors.
Because i started crying, he saw how upset I was and performed an emg.
This was the first emg that was done like it is supposed to-he didn’t ask of me to engage my muscles as strong as I can, but first mildly and than strong. He moved the needle in my muscles (no one did that before). He even left the needle still in muscles for as long as 2 minutes!! He tested only few muscles I was complaning about. Extensor digitorum brevis (8mV amplitude) gastrocnemious(3mV amplitude) and abductor pollicis (4mV) amplitude. There was no insertional activity, no fibrilations or fasciculations. At the end emg was stated NORMAL.
So it is consistent with other emg findings i had-chronic reinervation.
I’m a bit concerned about those “rather brisk reflexes” but I’m doing my mantra: You would be very weak in 3.5 years span, you would have very visible atrophy in 3.5 years, there would be noticable progression in symptoms in 3.5 years...etc. I’m trying every day to keep my head above water.
I will keep you informed after my appointment with rheumatogist, i hope that this thread won’t be closed like my previous one so moderators wont be mad at me for opening a new one.
Sending hugs to everyone, thank you for reading my threads and helping me with my anxiety. I know that we undiagnosed folks are pain in the ass here, and I try really hard to avoid posting as much as I can.
I promised I will not post until I get checked with my doctor. I still have an appointment with rheumatologist but it will be in April.
So as the title says, i’ve been to als neurologist in Slovenia. The doctor seems really nice and well educated, I’m a bit calmer now.
He did complete neuro exam on me. He noticed “rather brisk tendon reflexes” and my plantar response was very difficult to elict, but at the end he managed to elict plantar flexor response. He graded my strenght 5/5. He didn’t noticed not one twitch even he was looking really hard for it.
My body is trying really hard to make me look foolish around doctors.
Because i started crying, he saw how upset I was and performed an emg.
This was the first emg that was done like it is supposed to-he didn’t ask of me to engage my muscles as strong as I can, but first mildly and than strong. He moved the needle in my muscles (no one did that before). He even left the needle still in muscles for as long as 2 minutes!! He tested only few muscles I was complaning about. Extensor digitorum brevis (8mV amplitude) gastrocnemious(3mV amplitude) and abductor pollicis (4mV) amplitude. There was no insertional activity, no fibrilations or fasciculations. At the end emg was stated NORMAL.
So it is consistent with other emg findings i had-chronic reinervation.
I’m a bit concerned about those “rather brisk reflexes” but I’m doing my mantra: You would be very weak in 3.5 years span, you would have very visible atrophy in 3.5 years, there would be noticable progression in symptoms in 3.5 years...etc. I’m trying every day to keep my head above water.
I will keep you informed after my appointment with rheumatogist, i hope that this thread won’t be closed like my previous one so moderators wont be mad at me for opening a new one.
Sending hugs to everyone, thank you for reading my threads and helping me with my anxiety. I know that we undiagnosed folks are pain in the ass here, and I try really hard to avoid posting as much as I can.