Romeosc
Distinguished member
- Joined
- Jan 2, 2018
- Messages
- 131
- Reason
- PALS
- Diagnosis
- 11/2017
- Country
- US
- State
- TN
- City
- Memphis
I was diagnosed Thanksgiving 2017.
Most problem with balance and gait. Walking with rollator walker. They say the problem began in hips. I have great difficulty rolling over or getting out of bed without pulling myself up with a rail! Once I pull myself to sitting position, I can use rail to stand and use walker. I weigh 285 pounds and don't want to hurt my wife's back pulling me up!
We have order a hospital bed, since new sleep number bed didn't solve problem!
I know everyone progresses at different rates, I have started home infusion of Radicava and hope to maintain some ability to get up and go to bathroom in middle of night.
I was interested in others experiences...
Also trying to be discrete, but my genitals have shrunk making urination messy. I didn't know that muscle was affected.
I'd like to stay with some independence as long as possible.
Thanks for any help
Most problem with balance and gait. Walking with rollator walker. They say the problem began in hips. I have great difficulty rolling over or getting out of bed without pulling myself up with a rail! Once I pull myself to sitting position, I can use rail to stand and use walker. I weigh 285 pounds and don't want to hurt my wife's back pulling me up!
We have order a hospital bed, since new sleep number bed didn't solve problem!
I know everyone progresses at different rates, I have started home infusion of Radicava and hope to maintain some ability to get up and go to bathroom in middle of night.
I was interested in others experiences...
Also trying to be discrete, but my genitals have shrunk making urination messy. I didn't know that muscle was affected.
I'd like to stay with some independence as long as possible.
Thanks for any help