i made it to 52 years old today. i did not think i would. the new medication seems to have stabalized me. i dont think i am in any immanent danger. i am able to (using the pwc) get from bed to recliner where i watch tv all day. i eat small very soft meals. when ever my muscles get tense or breathing feels hard i take a pill. i now have someone with me 24/7 but feel like i have more days ahead of me.