Deejayjewels
New member
- Joined
- Jan 13, 2018
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NE
- City
- LINCOLN
Hey, folks. I am a 26 year old woman living in the state of Nebraska. I am mother to one beautiful, perfect 14 month old.
First, I feel it necessary to commend each and every one of those whom actually "deserve" to be here... and by that, I mean those that have received diagnosis of ALS and still, for one reason or another, choose to spend any portion of their time here, alleviating fears or offering familial support. You are a strong, beautiful people.
On to my original purpose here, recently both my hands have begun seizing up. Now, I am not meaning I have panic. When i panic, my mouth and eye areas twitch and vibrate. No, i mean, once i have worked through those feelings of anxiousness, my hand still remain cramped.
It is not painful. My thumbs pull towards the space between my ring and middle fingers, which stiffen straight out, almost bent the other way. The fingers and hands are difficult to move perfectly, but I am capable thus far. The stange feeling travels up noth of my arms. They feel particularly... weak? Tired? They twitch strangely, in a way ai cannot feel, and can almost not be seen; I am hydrated and very nourished. Bloodwork has shown nothing abnormal, am waiting for insurance to go through before I may see neurologist. I have family depending on me.
Sypmtoms are minimal in the a.m., and progress to their worst in the late evening/night. Ingesting alcohol seems to make certain symptoms less obvious.
I am posting because the sticky labeledto be read before posting is contradictedby other information; both clinical and personal testimony.
Again, I have the most respect for you all. And of I am to join your ranks in the coming months, I should be proud yo be amongst such courageous and hardy folk.
Highest of Regards -
- DizMiss Jewels
Ps - symptoms seem to worsen with pressure, IE: blood pressure cuff
First, I feel it necessary to commend each and every one of those whom actually "deserve" to be here... and by that, I mean those that have received diagnosis of ALS and still, for one reason or another, choose to spend any portion of their time here, alleviating fears or offering familial support. You are a strong, beautiful people.
On to my original purpose here, recently both my hands have begun seizing up. Now, I am not meaning I have panic. When i panic, my mouth and eye areas twitch and vibrate. No, i mean, once i have worked through those feelings of anxiousness, my hand still remain cramped.
It is not painful. My thumbs pull towards the space between my ring and middle fingers, which stiffen straight out, almost bent the other way. The fingers and hands are difficult to move perfectly, but I am capable thus far. The stange feeling travels up noth of my arms. They feel particularly... weak? Tired? They twitch strangely, in a way ai cannot feel, and can almost not be seen; I am hydrated and very nourished. Bloodwork has shown nothing abnormal, am waiting for insurance to go through before I may see neurologist. I have family depending on me.
Sypmtoms are minimal in the a.m., and progress to their worst in the late evening/night. Ingesting alcohol seems to make certain symptoms less obvious.
I am posting because the sticky labeledto be read before posting is contradictedby other information; both clinical and personal testimony.
Again, I have the most respect for you all. And of I am to join your ranks in the coming months, I should be proud yo be amongst such courageous and hardy folk.
Highest of Regards -
- DizMiss Jewels
Ps - symptoms seem to worsen with pressure, IE: blood pressure cuff