- Joined
- May 7, 2017
- Messages
- 1,884
- Reason
- Lost a loved one
- Diagnosis
- 05/2017
- Country
- CA
- State
- AB
- City
- CALGARY
Happy Friday everyone (and Saturday to some).
My PALS started on the phase 2 clinical trial of Pimozide on December 20th. The first week he had no side effects, but the last several days have been brutal. Excessive drooling, slurred speech and a shuffling walk. He sleeps constantly, too, and has come home from work early everyday this week.He seems to have aged 30 years in a week and a half.
He's going to try to hang on for a bit longer on the clinical trial or be forced to go on disability to get through the next 5 and a half months. He doesnt want to stop it, as the benefits shown in phase 1 have been quite remarkable.
He is on the lowest dosage (1mg), so he cannot reduce the meds further. Just thought I'd give an update on progress for anyone who has been aware of Pimozide.
My PALS started on the phase 2 clinical trial of Pimozide on December 20th. The first week he had no side effects, but the last several days have been brutal. Excessive drooling, slurred speech and a shuffling walk. He sleeps constantly, too, and has come home from work early everyday this week.He seems to have aged 30 years in a week and a half.
He's going to try to hang on for a bit longer on the clinical trial or be forced to go on disability to get through the next 5 and a half months. He doesnt want to stop it, as the benefits shown in phase 1 have been quite remarkable.
He is on the lowest dosage (1mg), so he cannot reduce the meds further. Just thought I'd give an update on progress for anyone who has been aware of Pimozide.