Thread: End stages
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Old 12-14-2017, 10:25 AM #4 (permalink)
Miav123 Miav123 is offline
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Join Date: 2016
City: Aurora
State: Ontario
Country: CA
Diagnosed: 08/2016
Interest: I lost a loved one to ALS/MND.
Posts: 46
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Miav123 Miav123 is offline
New Member
Join Date: 2016
City: Aurora
State: Ontario
Country: CA
Diagnosed: 08/2016
Interest: I lost a loved one to ALS/MND.
Posts: 46
Miav123 is on a distinguished road
Default Re: End stages

Quote:
Originally Posted by lgelb View Post
Miav, very sorry to hear of your dad's rapid progression.

Given the turn of events you describe, it is possible that his mood may be in part driving some of the dips and rises in his physical state.

One caution since he does not seem to see himself at the end of life right now: even with asthma, supplemental oxygen is usually not advised due to the risk of CO2 buildup, which accelerates decline. So we would normally try everything possible with BiPAP optimized for the right volume of air he can move, and low-to-high tech secretion control such as suction/cough assist, before/instead of adding low-flow oxygen.
They suggested oxygen because when he was in the hospital for a couple of days two weeks ago, it seemed to help him. We use it with the Bi-Pap and so far he only seems to have more energy than before. We were told that it is not normally given to ALS patients, but because this is end stages they want to give him whatever makes him more comfortable.
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