Thread: End stages
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Old 12-12-2017, 10:49 AM #1 (permalink)
Miav123 Miav123 is offline
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Join Date: 2016
City: Aurora
State: Ontario
Country: CA
Diagnosed: 08/2016
Interest: I lost a loved one to ALS/MND.
Posts: 45
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Miav123 Miav123 is offline
New Member
Join Date: 2016
City: Aurora
State: Ontario
Country: CA
Diagnosed: 08/2016
Interest: I lost a loved one to ALS/MND.
Posts: 45
Miav123 is on a distinguished road
Default End stages

It's hard to believe that a month ago my dad was still walking, eating and speaking normally, using his left hand/arm.
His progression since then has been astounding. He now has a wheelchair, hospital bed, lift, bi-pap, oxygen to help asthma, cough assist, suction, morphine...the list goes on and on. Last week we thought the end was very near. He was sleeping so much, had morphine every 4 hours to settle his cough, hardly spoke or ate.
For the past few days, he's been wanting to get out of bed, talking and eating more...just seems more alert. His palliative care nurse even said she doesn't hear the crackling in his chest anymore. How is this possible? Anyone else experience this with their CALS? ALS is so unpredictable...

Last edited by Miav123 : 12-12-2017 at 10:56 AM
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