I have posted here before about my wife's condition. She has been in a wheel chair for over a year now and getting very weak. Recently she was hospitalized due to horrible stomach pains and constipation. I sent her to Lahey Clinic 3 times in a week by ambulance and they finally admitted her. They found nothing and I got jerked around by the hospitalist. He didn't even want a gastroentomolgist to see her. Finally I insisted and the looked in her stomach with and endoscopy and found nothing. She went home with as much pain as she had when she went in.
Having said this..is it common to develop gastro issues with ALS? She still does not have a clear diagnosis of ALS in fact many nurses and PT people look at her and say that it doesn't look like ALS...her muscles are extremely stiff in her left arm and neck. She can still move her right arm and right leg a bit.
Also, there seems to be a strong genetic issue as well. Her mother had neurological problems, as well as her 2 sisters. My wife developed psychosis 20 years ago when she started hearing voices, so the psychiatrist gave her risperdone which is a know dopamine antagonist that can affect motor neurons.
The hearing voices is a mystery because she is not schizophrenic. People don't become schizophrenic at age 50. Any advice is greatly appreciated. She had an inconclusive EMG 2 years ago because she couldn't tolerate it, but she completed the Nerve Conduction part and they found low velocity.
Having said this..is it common to develop gastro issues with ALS? She still does not have a clear diagnosis of ALS in fact many nurses and PT people look at her and say that it doesn't look like ALS...her muscles are extremely stiff in her left arm and neck. She can still move her right arm and right leg a bit.
Also, there seems to be a strong genetic issue as well. Her mother had neurological problems, as well as her 2 sisters. My wife developed psychosis 20 years ago when she started hearing voices, so the psychiatrist gave her risperdone which is a know dopamine antagonist that can affect motor neurons.
The hearing voices is a mystery because she is not schizophrenic. People don't become schizophrenic at age 50. Any advice is greatly appreciated. She had an inconclusive EMG 2 years ago because she couldn't tolerate it, but she completed the Nerve Conduction part and they found low velocity.