Gingy
New member
- Joined
- Oct 10, 2017
- Messages
- 4
- Reason
- Learn about ALS
- Country
- Us
- State
- Virginia
- City
- Woodstock
First of all I can't believe I'm doing this. I am so sorry if this is disrespectful. I just feel so alone and scared.
The past few weeks have been a nightmare. First I felt terrible, I will admit I am under huge amount of stress. But it all cummulatrd one night when I had a extremely painful headache and then my tongue twitched like crazy I could feel it and see it at rest in my mouth just on the tip though and maybe once in the middle.
Which yes I read was not a problem really on its own. Since then I have driven myself mad looking up everything under the sun convincing myself I have this which is insane in itself why would anyone wish to convince themselves?
In the mean time I also experienced burning mouth and woke up choking and once biting my tongue unable to sleep afterwards due to extreme phobia.
I have been to the hospital which I'm sure looks insane on three different occasions hoping one would at least do an Mri unfortunately was not the case.
I constantly stick my tongue out to see it and have noticed that when saying aaaahhh my soft platelet doesn't move. Also my uvula curves to the left but it's always done that. Plus I also always sound nasely. However now I can't sing properly which I'm wondering is because I have actually damaged my throat by repetitive testing. I still have complete movement in my tongue but I think I have been biting it throughout the day.
It's obsessive I know i actually called my doctor hoping to get him to give me anxiety meds but to no avail until I see him Thursday.
I have scheduled a neuro appointment for November 1st but that in its self is terrifying. I'm so sorry that anyone ever goes through this. I need a hug a bottle of tequila and a pep talk.
They did prescribe me neurontin but after seeing its nasty after effects I'm trying not to take it however when I don't take it I get a headache and some twitching in tongue and other places. I still can't sleep I wake myself everytime. I'm only getting 2-3 hours of sleep a. Night and last night my leg jerk ed so bad it woke me up.
I just. Needed someone to talk to and if anyone has some reassurance that would be nice to but understanding if there is none. The fact that I'm even asking from people who do definitely have it is terrible in itself.
Thank you for your time
The extremely disturbed and mad at herself for going crazy ginger.
The past few weeks have been a nightmare. First I felt terrible, I will admit I am under huge amount of stress. But it all cummulatrd one night when I had a extremely painful headache and then my tongue twitched like crazy I could feel it and see it at rest in my mouth just on the tip though and maybe once in the middle.
Which yes I read was not a problem really on its own. Since then I have driven myself mad looking up everything under the sun convincing myself I have this which is insane in itself why would anyone wish to convince themselves?
In the mean time I also experienced burning mouth and woke up choking and once biting my tongue unable to sleep afterwards due to extreme phobia.
I have been to the hospital which I'm sure looks insane on three different occasions hoping one would at least do an Mri unfortunately was not the case.
I constantly stick my tongue out to see it and have noticed that when saying aaaahhh my soft platelet doesn't move. Also my uvula curves to the left but it's always done that. Plus I also always sound nasely. However now I can't sing properly which I'm wondering is because I have actually damaged my throat by repetitive testing. I still have complete movement in my tongue but I think I have been biting it throughout the day.
It's obsessive I know i actually called my doctor hoping to get him to give me anxiety meds but to no avail until I see him Thursday.
I have scheduled a neuro appointment for November 1st but that in its self is terrifying. I'm so sorry that anyone ever goes through this. I need a hug a bottle of tequila and a pep talk.
They did prescribe me neurontin but after seeing its nasty after effects I'm trying not to take it however when I don't take it I get a headache and some twitching in tongue and other places. I still can't sleep I wake myself everytime. I'm only getting 2-3 hours of sleep a. Night and last night my leg jerk ed so bad it woke me up.
I just. Needed someone to talk to and if anyone has some reassurance that would be nice to but understanding if there is none. The fact that I'm even asking from people who do definitely have it is terrible in itself.
Thank you for your time
The extremely disturbed and mad at herself for going crazy ginger.