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Marcia Speakman · 10-28-2005, 07:13 AM

Hi Shelly, I just wondered if your Mom had her tube in yet. My mom has a G-tube and does bolis feedings. We have had a lot of trouble but at the same time it is a big relief. Mom was eating less and less and the biggest issue was taking her meds. She could hardly swallow. She had her tube but in in August, Went fine at first but she got an infection--got over it and then her tube became displaced and the food was going between the wall of her stomach. Very painful!!. She had her tube replaced in Sept. Now it is much better and I can tell by how it looks this time that it was too tight the first time. Her sight has healed nicely now. They have her on 4 1/2 cans supplement a day. They said five feedings at first but I was able to increase amounts and get her down to 4 feedings. And now I do 3. She only weighs 120 lbs. Is 77 with very very little activity so I have found if we just do 3 cans a day-1 each feeding that she can still gain wright. They have her on ensure pluse or equivelant. Equate plus by walmart is much much cheaper but she is currently using nutrien 1.5 because the hospital set us up with a home delivery and since she is 100% tube fed medicare will hopefully pay 80% and her other incurance will pick up the rest. We are waiting to find out. I hope so. Home delivery is very expensive. $3.50 a can vrs. $1 a can for the equate, but it is so nice to have a shippment come for the whole month and not to have to worry about picking it up. Mom does not like her feedings!!!. She gets heartburn really bad during the feeding but normally leaves soon afterwards. She is on meds for heartburn but the heartburn during feedings is quite different from regular acid reflux. She is never hungry and would not have her feedings if I did not just do it. On the plus side, she is gaining weight, Taking meds is wonderful!! She will not or cannot do her feedings herself so I do them all. This makes it hard for me to get away for very long at a time. She lives with my husband and I and I am her caregiver. She also has a very difficult time walking so someone has to be here at all times now. I went through a lot with her tube in the beginning and wish I had known about this sight. It seemed I always had a question and no one to answer it. Please feel free to contact me at any time if you have a question or concern that I might help with.

10-28-2005, 07:13 AM	#6 (permalink)
Marcia Speakman New Member (Say Hi) Registered Member Join Date: 2005 Posts: 7	Hi Shelly, I just wondered if your Mom had her tube in yet. My mom has a G-tube and does bolis feedings. We have had a lot of trouble but at the same time it is a big relief. Mom was eating less and less and the biggest issue was taking her meds. She could hardly swallow. She had her tube but in in August, Went fine at first but she got an infection--got over it and then her tube became displaced and the food was going between the wall of her stomach. Very painful!!. She had her tube replaced in Sept. Now it is much better and I can tell by how it looks this time that it was too tight the first time. Her sight has healed nicely now. They have her on 4 1/2 cans supplement a day. They said five feedings at first but I was able to increase amounts and get her down to 4 feedings. And now I do 3. She only weighs 120 lbs. Is 77 with very very little activity so I have found if we just do 3 cans a day-1 each feeding that she can still gain wright. They have her on ensure pluse or equivelant. Equate plus by walmart is much much cheaper but she is currently using nutrien 1.5 because the hospital set us up with a home delivery and since she is 100% tube fed medicare will hopefully pay 80% and her other incurance will pick up the rest. We are waiting to find out. I hope so. Home delivery is very expensive. $3.50 a can vrs. $1 a can for the equate, but it is so nice to have a shippment come for the whole month and not to have to worry about picking it up. Mom does not like her feedings!!!. She gets heartburn really bad during the feeding but normally leaves soon afterwards. She is on meds for heartburn but the heartburn during feedings is quite different from regular acid reflux. She is never hungry and would not have her feedings if I did not just do it. On the plus side, she is gaining weight, Taking meds is wonderful!! She will not or cannot do her feedings herself so I do them all. This makes it hard for me to get away for very long at a time. She lives with my husband and I and I am her caregiver. She also has a very difficult time walking so someone has to be here at all times now. I went through a lot with her tube in the beginning and wish I had known about this sight. It seemed I always had a question and no one to answer it. Please feel free to contact me at any time if you have a question or concern that I might help with.