- Joined
- May 7, 2017
- Messages
- 1,884
- Reason
- Lost a loved one
- Diagnosis
- 05/2017
- Country
- CA
- State
- AB
- City
- CALGARY
Hello all,
My husband has left leg onset and when we got the unofficial diagnosis on May 12th by the neurophysiatrist, the EMG showed the ALS is in his right leg, too, although he has yet to show symptoms.
My question is, if the EMG picked it up in his right leg back in May, when would the drop foot begin in that right leg? I'm constantly worried that it will come on like it did his left leg, with him tripping over his toes. This time, however, he has no other leg to support him and he could really hurt himself. He walks with a cane and an AFO, neither of which will do him any good if his right leg goes. How long does it usually take for noticeable symptoms if the EMG picked it up months ago?
We are trying to be proactive and are already looking at an accessible van and the ALS clinic has WC lifts for the stairs for us, as well as a PWC. Should we be getting all of this together now? I really dislike waiting for the failure of my husband's other leg, as it seems so bleak, but knowing an approximate time frame of symptoms might be helpful. Or maybe not... I don't know.
Thanks everyone
J
My husband has left leg onset and when we got the unofficial diagnosis on May 12th by the neurophysiatrist, the EMG showed the ALS is in his right leg, too, although he has yet to show symptoms.
My question is, if the EMG picked it up in his right leg back in May, when would the drop foot begin in that right leg? I'm constantly worried that it will come on like it did his left leg, with him tripping over his toes. This time, however, he has no other leg to support him and he could really hurt himself. He walks with a cane and an AFO, neither of which will do him any good if his right leg goes. How long does it usually take for noticeable symptoms if the EMG picked it up months ago?
We are trying to be proactive and are already looking at an accessible van and the ALS clinic has WC lifts for the stairs for us, as well as a PWC. Should we be getting all of this together now? I really dislike waiting for the failure of my husband's other leg, as it seems so bleak, but knowing an approximate time frame of symptoms might be helpful. Or maybe not... I don't know.
Thanks everyone
J