Radicava with Kaiser

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9patch

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Joined
Sep 11, 2017
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Reason
Loved one DX
Diagnosis
08/2017
Country
US
State
OR
City
Portland
Hi. My husband was diagnosed with ALS last month :(

We have Kaiser Oregon. Has anyone successfully gotten Radicava with Kaiser? Any tips for advocacy for us?

Thanks!
Karen
 
We were told last month at our clinic (Duke Univ) that only one person in the U.S. has been injected. Apparently Medicare has not approved Radicava yet.
 
Duke is wrong, two people at least in the Facebook ALS group have and there is " bridge" funding to pay for 24 moths while it weaves through Medicare.
 
Duke is wrong, two people at least in the Facebook ALS group have and there is " bridge" funding to pay for 24 moths while it weaves through Medicare.

That is great! But if that's the case, then why have only two people been injected, do you know? I would think if the bridge was there, more people would be moving forward. This is interesting and I'll look into it.
 
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