Thread: I am scared
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Old 08-07-2017, 09:19 AM #3 (permalink)
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Join Date: 2017
City: Wrocław
State: DL
Country: PL
Interest: I am a family member of someone with ALS/MND.
Posts: 8
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New Member (Say Hi)
Feared's Avatar
Join Date: 2017
City: Wrocław
State: DL
Country: PL
Interest: I am a family member of someone with ALS/MND.
Posts: 8
Feared is on a distinguished road
Default Re: I am scared

Quote:
I am sorry about your mother.
Yeah thanks.
Quote:
It is not unusual for family members to develop fear and worrisome symptoms
Yes I guess so especially in me as I really sometimes badly anxious with different serious illnesses once I read about them. But ok its not so bad, I just pay big attention to any symptom that time it is real fear as I got a person in my close family with this ilness And i really fell bit different even before I started to read of it.
But I also started feeling those small tingle tickle feeling like warm in one place for a second, little pressing or pain - sometimes it stops when I dont think of it and sometimes probably not but I also feel tiredness when waking up at 7-8 like today it was almost 9:00 and I fell like I want to go to bed again, feeling my legs not enough rested. I used to wake up earlier but never felt comfortable about it. I was quite fine and not complaining of that weeks ago, although I used to feel like now but never complained too much till I read about ALS and thoguth that its what I get.
I feel uncomfortable in twisting the keys in my hand just to get right one maybe it seems to me, as illusion? Or really I am more clumsy? I don;t know. Why just now?
Quote:
Most ALS is NOT inherited. If your mom is the first person in the family to have it the chances of genetic ALS are extremely low. There is a post today by someone who has lost 7 family members to ALS. I am the 6th person in my lifetime to be affected in my family THAT is how FALS goes
Yes it is as she claims she is first (parents of her died yes. But from another diseases, not related, both had cerebral hemorrhage, several and died much later after 70s or 80s?) her siblings are 62 and 66? and one of them has cerebral hemorrhage and not yet sick on ALS - nothing to do with ALS I guess. Sisters of her grandmother also probably never had ALS cause she would know, but u know, u cant get so perfect info when they live so far away. But probably it wouldnt be a secret if they were ill. So she is only and first. But u know I heard stories of people who got sick and had their parents sick without history of others.
Its scary to have this load. Its very sad that you have so big problem with ALS, its depressing. I am sorry for You (
How was the difference between your members and you in age when it got bad?
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