notBrad
Senior member
- Joined
- Feb 26, 2015
- Messages
- 632
- Reason
- PALS
- Diagnosis
- 04/2015
- Country
- US
- State
- OR
- City
- The coast of
Hi all,
My tobii only has " tracheostomy" in its auto complete and since I feel very lazy today that is going to be the catch all for anything related to the operation.
So I am looking at getting a tracheostomy and want to try to schedule the optimal time to get it, something early enough to give me the best odds of having minimal issues but still late enough that if it absolutely is a living hell I can call it a night without having wasted time futzing with it that could have been good times.
I have taken to wearing the trilogy twenty four seven and as I expected I soon found that I needed it rather than just wearing it to give myself a break.
First thing was running it by my neurologist, who surprisingly enough didn't like the idea of a tracheostomy. Anyway we talked to ENT Surgeon who also recommended against it. He said that my vocal cords and throat muscles were still working well at clearing my lungs and said it could actually shorten my life by making me more susceptible to pneumonia and other things.
But my RT and several others, some of whom actually have them ( tracheostomy) say they are not that difficult to live with and the claims of complexity, etc... are exaggerated.
I would love to hear opinions and recommendations.
Thanks,
Brad
My tobii only has " tracheostomy" in its auto complete and since I feel very lazy today that is going to be the catch all for anything related to the operation.
So I am looking at getting a tracheostomy and want to try to schedule the optimal time to get it, something early enough to give me the best odds of having minimal issues but still late enough that if it absolutely is a living hell I can call it a night without having wasted time futzing with it that could have been good times.
I have taken to wearing the trilogy twenty four seven and as I expected I soon found that I needed it rather than just wearing it to give myself a break.
First thing was running it by my neurologist, who surprisingly enough didn't like the idea of a tracheostomy. Anyway we talked to ENT Surgeon who also recommended against it. He said that my vocal cords and throat muscles were still working well at clearing my lungs and said it could actually shorten my life by making me more susceptible to pneumonia and other things.
But my RT and several others, some of whom actually have them ( tracheostomy) say they are not that difficult to live with and the claims of complexity, etc... are exaggerated.
I would love to hear opinions and recommendations.
Thanks,
Brad