Lizzypip68
Member
- Joined
- Jun 18, 2017
- Messages
- 16
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- Bournmouth
Hi everyone, I'm very new to this forum and would very much appreciate any advice you could give me regarding my ongoing symptoms....
I first noticed fasciculations in my left calf 3 months ago and within a week was aware of them pretty much everywhere. In truth I think they have been going on for quite a while as I've been aware of odd buzzing sensations for ages but hadn't realised what it was until putting on a pair of shorts for the first time this year when I noticed the calf fasciculations.
I visited my GP who did a brief strength test, acknowledged the presence of fasciculations but dismissed my concerns as stress related. after a few weeks of increasing symptoms I decided to go and see a Neurologist privately. He talked to me at length then examined me on a couch where he watched my legs and arms whilst tapping them periodically to check reflexes. At the end of the appointment he diagnosed BFS saying my legs were strong and he was 99% certain it was BFS but suggested follow up nerve conduction tests.
Since this time I have noticed atrophy in my left calf (which measures one inch smaller than the right) and also at the back of my ankle on this same leg. I went for the nerve conduction tests last week and the atrophy was noted by the technician and also I struggled to complete the test due to severe cramp every time I had to push my foot down. At the end of the test he advised that the result would be 7-10 days but that he had noted the fasciculations in left calf and occasional ones in the right side. He asked about previous back problems (2 microdiscectomys 9 years ago) and said that some symptoms may be as a result of this. I asked if I should stop worrying about MND and he hesitated for a few seconds before finally saying yes.
Do my symptoms sound like MND? I have read that it can't be BFS if you have atrophy but also at this point I do not have any clinical weakness and wonder if that would show by now with MND? I also have pain throughout my left leg from the hip to the ankle which is constant and a buzzing sensation in my leg and foot. Any insight would be greatly appreciated and thank you for taking the time to read this.
I first noticed fasciculations in my left calf 3 months ago and within a week was aware of them pretty much everywhere. In truth I think they have been going on for quite a while as I've been aware of odd buzzing sensations for ages but hadn't realised what it was until putting on a pair of shorts for the first time this year when I noticed the calf fasciculations.
I visited my GP who did a brief strength test, acknowledged the presence of fasciculations but dismissed my concerns as stress related. after a few weeks of increasing symptoms I decided to go and see a Neurologist privately. He talked to me at length then examined me on a couch where he watched my legs and arms whilst tapping them periodically to check reflexes. At the end of the appointment he diagnosed BFS saying my legs were strong and he was 99% certain it was BFS but suggested follow up nerve conduction tests.
Since this time I have noticed atrophy in my left calf (which measures one inch smaller than the right) and also at the back of my ankle on this same leg. I went for the nerve conduction tests last week and the atrophy was noted by the technician and also I struggled to complete the test due to severe cramp every time I had to push my foot down. At the end of the test he advised that the result would be 7-10 days but that he had noted the fasciculations in left calf and occasional ones in the right side. He asked about previous back problems (2 microdiscectomys 9 years ago) and said that some symptoms may be as a result of this. I asked if I should stop worrying about MND and he hesitated for a few seconds before finally saying yes.
Do my symptoms sound like MND? I have read that it can't be BFS if you have atrophy but also at this point I do not have any clinical weakness and wonder if that would show by now with MND? I also have pain throughout my left leg from the hip to the ankle which is constant and a buzzing sensation in my leg and foot. Any insight would be greatly appreciated and thank you for taking the time to read this.