My name is Jackie I am a hospice Home health aide I have a patients w/
ALS he too has a feeding tube; they call it bolis feeding and bolis meds he wasnt hooked to the pump he had his meds poured into his peg tub and also his liquid boost but since that time that was when he was in his home, hes now in a nursing home they took him off of the boost; he was loosing weight so now the nursing home bumped up his calorie and bumped up the protien hes gained 5lbs in a week. He is also on a vent and oxygen and is bed bound but hes also in denial about his disease I know and feel your frustrations take care Jackie
