Steve, your bio says you have diagnosed with PLS. I'm sure it's been a long journey to have been diagnosed with Primary Lateral Sclerosis... being that protocol requires 3 to 5 years of testing, observation and exclusion. Also... from your bio it says you were diagnosed 3 years ago.
As Tillie suggested... maybe you could tell us a little about yourself and your "Journey" as it used to be referred to here.
With a diagnosis of PLS you would be eligible to participate in most ALS Clinics as I go to one myself. And, you being from Islip Long Island and the huge nearby metropolis of New York City I'm sure there are several.
If you are a Veteran, with the right diagnostic code, you are also eligible to some considerable benefits.
What help are you having difficulty finding?
PS There are many informative Threads in this sub-Forum below your first Thread here that may be helpful.