luckycrown
New member
- Joined
- Apr 24, 2017
- Messages
- 2
- Reason
- Lost a loved one
- Diagnosis
- 04/2015
- Country
- CA
- State
- BC
- City
- Richmond
My mom passed away today after a long two years of holding on with ALS. I must say that even though I've read how this disease progresses and that there's no cure, I still thought that we had more time with her. Her sudden passing still feels raw and I'm sitting in my room across the hall from her room waiting for her to press her call bell that will never ring.
...that ring to bring her to the bathroom.
...that ring to adjust her pillows
...that ring to help her with suction.
...that ring to help her to a sitting position on the bed to help her breathe easier
...that ring to take off her neck brace.
...that ring to put it back on
But I must admit that I wasn't the best caregiver. Prone to bouts of anger and frustration at times. Frustration when I heard that bell... but now I know I'll never hear it.
...that ring to bring her to the bathroom.
...that ring to adjust her pillows
...that ring to help her with suction.
...that ring to help her to a sitting position on the bed to help her breathe easier
...that ring to take off her neck brace.
...that ring to put it back on
But I must admit that I wasn't the best caregiver. Prone to bouts of anger and frustration at times. Frustration when I heard that bell... but now I know I'll never hear it.