profeJ
Member
- Joined
- Mar 13, 2017
- Messages
- 13
- Reason
- PALS
- Diagnosis
- 04/2017
- Country
- US
- State
- New Mexico
- City
- Santa Fe
Update!
I went to the University Hospital for a second Nerve Conduct Study and EMG.
NCS: The doctor tested both arms, hands, wrists and my right leg.
EMG: The doctor tested my right arm, hand, as well as my left arm, right leg and back.
While she said she tried everything to find symptoms that mimic ALS, in the end she couldn't and therefore diagnosed me with the disease and started me immediately on riluzole (Rilutek).
My wife, our families and I are devastated by trying to remain positive. I have scheduled a second appointment (second opinion) for later this month in Phoenix, AZ but I'm not getting my hopes up. Thanks to everyone who has sent out support and positive vibes. As you all know, this is a very bitter pill to swallow but I"m trying to stay upbeat for the sake of my young children.
I went to the University Hospital for a second Nerve Conduct Study and EMG.
NCS: The doctor tested both arms, hands, wrists and my right leg.
EMG: The doctor tested my right arm, hand, as well as my left arm, right leg and back.
While she said she tried everything to find symptoms that mimic ALS, in the end she couldn't and therefore diagnosed me with the disease and started me immediately on riluzole (Rilutek).
My wife, our families and I are devastated by trying to remain positive. I have scheduled a second appointment (second opinion) for later this month in Phoenix, AZ but I'm not getting my hopes up. Thanks to everyone who has sent out support and positive vibes. As you all know, this is a very bitter pill to swallow but I"m trying to stay upbeat for the sake of my young children.