tonguetwitcher
Member
- Joined
- Feb 15, 2017
- Messages
- 19
- Reason
- Learn about ALS
- Country
- CA
- State
- Québec
- City
- Montreal
i,ve done an EMG 2 months ago (I wont repeat the whole story, I guess it could be easily found if needed) with an ALS specialist from MOntreal . The doc told me to see her againfor a follow up and to do some bloodtest (she thought that my ymptoms could be related to Mystenia gravis) and tjhat my exam was normal.
Now come the appointment of today. She told me that bloodwork was normal. I've done a nerve conduction test and the needle part (EMG).
She told me : '' I can now see the fasciculation you are feeling, it's different from the last time. It's still not ALS yet but that will need a follow up again in 3 months''. I ask her if it could be benign '' it could be'' she said, and when I ask her could it be ALS she Told me ''that it could always be that too'' only time would tell.
I told her that this his very stressfull to me, instead of trying to reaasure me she prescribe me something (Ativan i think) to manage my anxiety.
When I wnet to the secretary to get an appointment the secretary told me that the doctor wants me to do a respiratory test. Of course she doesn't know why and the doctor was nowhere to told me why she needs that exam. Do you have any idea ?
Also she done some neurologic test with the hammer, and my left leg have not react the same with the right did. The left seem normal and the right seem sluggish, or less pronounced than the left. The EMG was done on the right of my body. Is that ''sluggish'' reaction could be indicative of ALS ?
Since she's a specialist and that found some als signs, i guess I can realistically think that I got one foot in the disease.....
And I forgot to ask her something: I have pain in my right arm for 2-3 weeks, it statrts from should goe in the tricep and continue to the thumb. Could an abnormal finding be related to that pain ?
Now come the appointment of today. She told me that bloodwork was normal. I've done a nerve conduction test and the needle part (EMG).
She told me : '' I can now see the fasciculation you are feeling, it's different from the last time. It's still not ALS yet but that will need a follow up again in 3 months''. I ask her if it could be benign '' it could be'' she said, and when I ask her could it be ALS she Told me ''that it could always be that too'' only time would tell.
I told her that this his very stressfull to me, instead of trying to reaasure me she prescribe me something (Ativan i think) to manage my anxiety.
When I wnet to the secretary to get an appointment the secretary told me that the doctor wants me to do a respiratory test. Of course she doesn't know why and the doctor was nowhere to told me why she needs that exam. Do you have any idea ?
Also she done some neurologic test with the hammer, and my left leg have not react the same with the right did. The left seem normal and the right seem sluggish, or less pronounced than the left. The EMG was done on the right of my body. Is that ''sluggish'' reaction could be indicative of ALS ?
Since she's a specialist and that found some als signs, i guess I can realistically think that I got one foot in the disease.....
And I forgot to ask her something: I have pain in my right arm for 2-3 weeks, it statrts from should goe in the tricep and continue to the thumb. Could an abnormal finding be related to that pain ?
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