tonguetwitcher
Member
- Joined
- Feb 15, 2017
- Messages
- 19
- Reason
- Learn about ALS
- Country
- CA
- State
- Québec
- City
- Montreal
Hi !
For almost 5 months now my tongue have strange behaviors. It fasciculates, twitches, ans sometimes get stuck between my teeths while i'm talking.
I've seen a neurologist last month who tell me that I should have an Emg done. Since then I got fgasciculations everywhere (stress I know...) I manage to find onespot in Montreal neurological hospital. Luckily, I learn before the test that the doctor who will perform the test it's one of Canada specialist of ALS.
The technician did the electrical shock part (NCV or something like that) on my four limbs. She could't say anything.
Then the doctor came in, ask me questions about my symptoms, do some test (reflex hammer, walking, tongue protrusion). Shethen stuck the needle in my right calves and right thigh. She then say that the examan was normal that theres aboslutly no sign of ALS. Shetoild me that we some others things can cause my tongue behavior, that we will do blood test and an MRI.
The technician then do more electrical test on my facial nerves (not fun at all!).
Questions:
1) Why would she exlude putting needle in bulbar region ? It's a bit of a worry for me since my problem is there ? I tend to have confidence in the doctors so I didn't ask her.
2) I read here and elsewhere that bulbar als could exist despite a clean limb emg. After 4-5 months of tongue biting/fasciculations. Would my mouth problems would be worse with ALS ?
3) Should I look for another emg that would include the tongue and/or bulbar region ?
Thnaks a lot in advance !
For almost 5 months now my tongue have strange behaviors. It fasciculates, twitches, ans sometimes get stuck between my teeths while i'm talking.
I've seen a neurologist last month who tell me that I should have an Emg done. Since then I got fgasciculations everywhere (stress I know...) I manage to find onespot in Montreal neurological hospital. Luckily, I learn before the test that the doctor who will perform the test it's one of Canada specialist of ALS.
The technician did the electrical shock part (NCV or something like that) on my four limbs. She could't say anything.
Then the doctor came in, ask me questions about my symptoms, do some test (reflex hammer, walking, tongue protrusion). Shethen stuck the needle in my right calves and right thigh. She then say that the examan was normal that theres aboslutly no sign of ALS. Shetoild me that we some others things can cause my tongue behavior, that we will do blood test and an MRI.
The technician then do more electrical test on my facial nerves (not fun at all!).
Questions:
1) Why would she exlude putting needle in bulbar region ? It's a bit of a worry for me since my problem is there ? I tend to have confidence in the doctors so I didn't ask her.
2) I read here and elsewhere that bulbar als could exist despite a clean limb emg. After 4-5 months of tongue biting/fasciculations. Would my mouth problems would be worse with ALS ?
3) Should I look for another emg that would include the tongue and/or bulbar region ?
Thnaks a lot in advance !
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