NJ20
New member
- Joined
- Jan 24, 2017
- Messages
- 5
- Reason
- Learn about ALS
- Country
- US
- State
- New Jersey
- City
- Randolph
Hi, I apologize in advance for how long this is-just want to make sure I don't miss anything.
I have had breathing issues for a few months now but thought nothing of it until later. It basically feels like my breathing muscles aren't strong enough and I am not getting enough air. This is constant and is at it's worst when I am lying down and when I wake up in the morning. About two months ago I started getting chest cramps and cramps in my right arm as well as soreness in my tricep. That week, as I was putting on socks I fell over because I suddenly could not balance on one foot. I haven't been able to balance since no matter how hard I try. I started having both painful and painless cramps in that foot. A few days later this started in the other foot and I could no longer balance on that one either. Gradually, my lower legs (one by one) and then my thighs started to feel tired after even using them a little and I started (and still do) get spasms anywhere in my legs. A few irregular spasms per minute, sometimes more, sometimes in a row. Then the heaviness, cramps and spasms started in my arms. This week I can't even type or lift up a fork to my mouth without it feeling extremely heavy and my arms feeling incredibly sore. I know that pain usually isn't associated with ALS however the soreness goes away if I completely relax and don't move or tense the muscle. This has also started to happen with my neck, shoulders and upper back.
I can't stand without clenching my butt muscles or I tip forward. I had 2 glasses of wine the other night and I was tripping all over. It was scary. 2 glasses usually does nothing for me.
I know these aren't the typical symptoms however the weakness, tripping, heaviness breathing with my chest and constant muscle twitching are bothering me. Dr. has said he has given me all the blood tests he can think of (a lot) including lyme's disease and they have all come back fine. Cardiologist said heart was fine. Neurologist said I don't have ALS before even examining me because he said I'm too young (20f). But he saw that my reflexes were brisk and said he can do an EMG if I want.
Has anyone experienced similar symptoms? Thank you!
I have had breathing issues for a few months now but thought nothing of it until later. It basically feels like my breathing muscles aren't strong enough and I am not getting enough air. This is constant and is at it's worst when I am lying down and when I wake up in the morning. About two months ago I started getting chest cramps and cramps in my right arm as well as soreness in my tricep. That week, as I was putting on socks I fell over because I suddenly could not balance on one foot. I haven't been able to balance since no matter how hard I try. I started having both painful and painless cramps in that foot. A few days later this started in the other foot and I could no longer balance on that one either. Gradually, my lower legs (one by one) and then my thighs started to feel tired after even using them a little and I started (and still do) get spasms anywhere in my legs. A few irregular spasms per minute, sometimes more, sometimes in a row. Then the heaviness, cramps and spasms started in my arms. This week I can't even type or lift up a fork to my mouth without it feeling extremely heavy and my arms feeling incredibly sore. I know that pain usually isn't associated with ALS however the soreness goes away if I completely relax and don't move or tense the muscle. This has also started to happen with my neck, shoulders and upper back.
I can't stand without clenching my butt muscles or I tip forward. I had 2 glasses of wine the other night and I was tripping all over. It was scary. 2 glasses usually does nothing for me.
I know these aren't the typical symptoms however the weakness, tripping, heaviness breathing with my chest and constant muscle twitching are bothering me. Dr. has said he has given me all the blood tests he can think of (a lot) including lyme's disease and they have all come back fine. Cardiologist said heart was fine. Neurologist said I don't have ALS before even examining me because he said I'm too young (20f). But he saw that my reflexes were brisk and said he can do an EMG if I want.
Has anyone experienced similar symptoms? Thank you!