Mw40love
New member
- Joined
- May 28, 2016
- Messages
- 5
- Reason
- Learn about ALS
- Country
- US
- State
- Oregon
- City
- Portland, OR
My fvc drops 25% when I lay down and I can't keep myself from falling over sideways (no matter how many bolsters) when propped up. I considered a medical bed, but after several nights in hospital falling to side, I finally got an electric Lazyboy instead. It has been such a godsend. I got one small enough to prop me up on the sides. When I get tired of a position I just change a tiny bit and my center of gravity changes to great relief. If I could have afforded it I would have gotten one that would help me stand, as I am needing that now.
You may note that I have no diagnosis, although they are sure now I do not have MG or Pompe. But hey, a helpful hint is a helpful hint.
PS, when I visit my children I take a zero gravity recliner lawn chair with me! Also excellent.
You may note that I have no diagnosis, although they are sure now I do not have MG or Pompe. But hey, a helpful hint is a helpful hint.
PS, when I visit my children I take a zero gravity recliner lawn chair with me! Also excellent.
