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Old 01-03-2017, 10:15 AM #10 (permalink)
sinforzar1 sinforzar1 is offline
New Member
 
Join Date: 2016
City: sabadell
State: barcelona
Country: spa
Interest: I am interested in learning about ALS/MND.
Posts: 11
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sinforzar1 sinforzar1 is offline
New Member
Join Date: 2016
City: sabadell
State: barcelona
Country: spa
Interest: I am interested in learning about ALS/MND.
Posts: 11
sinforzar1 is on a distinguished road
Default Re: many clean emg's but symptoms

Hello Atsugi,

I do apologise if you feel that Iīm waisting people time, it was no my purpose, of course. In fact, after my last experience, right now I appreciate time over anything else in the world and the last thing Iīm interested in is waisting other people time.

The thing is that my last neuro didnīt disregard 100% the ALS as a possibility (although he told me that it was unlikely) despite of clean EMG and Neuro exam (performed by himself). This is why I have been requested for following up after 3 more (furthermore, I have been requested by this neuro to take more tests to disregard other source of the problem as miopahites, etc.. A kind of RMI on the muscles... Next week I will take this test.

My worries are regarding my symptoms (left leg weakness, right hand weakness, lack of right hand dexterity (I play piano and I notice that very much) and generic fatigue all the time. If I hadnīt that symptoms I would have forgotten ALS for ever. Additionaly, as I post on my first message, I got a x3 times over the average the glutamic acid on serum and Iīm aware that abnormlatities on the glutamate cycle and increased serum level on plasma are common on PALS. Furthermore, I donīt have a diagnostic for all of that symptoms yet.

Clean EMGīs are the only thing that bring me something of hope regarding my current situation. As this is the only hopefull thing I have, Iīm interested in knowing how reliable are at this time on a early potential ALS stage (There are a lot of cases where the abnormalities on the EMG where showed after some initial "negative" tests, on that fórum there are some cases...)

Regarding Horevo the last picture that I had is that she was worried because she was taking a treatment for MG but it was not working, I was not aware about any other update after that.

Sorry for such a long message, but I can not speak about this topic with anyonelse (I donīt want to worry my spouse, Friends...) until I donīt have a firm diagnostic (whatever it is).

Thank you to all of you again and sorry again if I have injured your sensitivity again.

My great encouragement to all the ones who are fighting his disease (patients & caregivers, familiars...).

Regards and happy new year (with delay).
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