Christy1972
New member
- Joined
- Oct 30, 2016
- Messages
- 5
- Reason
- Lost a loved one
- Country
- US
- State
- Kentucky
- City
- 42501
I lost my Dad in 1989 to ALS. To date there have been 22 or more in our family to battle this disease. Recently I've had a cousin diagnosed. It's been 28 years and now it's back. I was 17 when I lost my Dad. My cousins dad passed 6 weeks after my Dad. So many emotions, so many memories that I hoped I'd never have to repeat. It's tough.
Decisions on genetic testing keeps going through my mind. Do I want to really know? What about my daughter? She's 18. I've always been open about the disease. There's so much research and new avenues.
I think I started blogging and this thread for support. I dreamed of my Dad. I told him I didn't know if I could do this again. He told me I had to fight for us. Maybe I'm crazy but I truly believe he was with me. So here I am, figuring out how to fight, how to support my cousin and her husband and young child. Praying daily for a cure.
Decisions on genetic testing keeps going through my mind. Do I want to really know? What about my daughter? She's 18. I've always been open about the disease. There's so much research and new avenues.
I think I started blogging and this thread for support. I dreamed of my Dad. I told him I didn't know if I could do this again. He told me I had to fight for us. Maybe I'm crazy but I truly believe he was with me. So here I am, figuring out how to fight, how to support my cousin and her husband and young child. Praying daily for a cure.