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Old 03-04-2008, 08:35 PM #9 (permalink)
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Lorie Lorie is offline
Senior Member
 
Join Date: 2007
City: Mobile
State: Alabama
Country: Uni
Interest: I am a family member of someone with ALS/MND.
Posts: 548
Lorie is on a distinguished road
Lorie Lorie is offline
Senior Member
Lorie's Avatar
Join Date: 2007
City: Mobile
State: Alabama
Country: Uni
Interest: I am a family member of someone with ALS/MND.
Posts: 548
Lorie is on a distinguished road
Default Vicki

There is a lot of people that either know someone with ALS, A family Member,Friend
or just Somebody that knows of someone with ALS. I have believed for a long time now, that they just don't have the number right. The ALS Registry Act will take a while. So in that aspect they are lagging behind in facing the fact that there are more people with ALS than thought. I had done my statistics for our area (S. Mobile) with MDA and the ALSA and Dynavox Tech. and Gulf Coast Rehab. Amazing! I knew it before that Article I sent you was in the Mobile Register. A lot of people either don't know to sign up with MDA or ALSA. The other thing that gets me. Dr. Yager the MDA/ALS Doctor/Neuro. here does not even give out any information for these places. Yes, I let them know about it!

I am going to find out if Dr. Yager is going to be interviewed by MDA? Oh Boy!

I have payed attention to all the new Members signing up here and other places. It is astonishing.

Lorie
Lorie is offline