Thread: Medicaid waiver
View Single Post
Old 07-22-2016, 11:18 AM #1 (permalink)
mbmurray mbmurray is offline
Member
 
Join Date: 2013
City: NOVA
State: VA
Country: US
Diagnosed: 01/2013
Interest: I have been diagnosed with ALS.
Posts: 116
mbmurray is on a distinguished road
mbmurray mbmurray is offline
Member
Join Date: 2013
City: NOVA
State: VA
Country: US
Diagnosed: 01/2013
Interest: I have been diagnosed with ALS.
Posts: 116
mbmurray is on a distinguished road
Default Medicaid waiver

I have no where to express how I am feeling, this place is the only place I could think of.

Because I am totally paralyzed and on a vent we qualified for the medicaid tech waiver, which allows us 16 hours per day of nursing. We live in rural VA so it is difficult to find nurses. We had one since October of last year, but she quit with no notice on Tuesday.

My wife is a wreck, I have 2 young kids and they are stuck in the house with me. If we don't fulfill 200 hours of nursing we lose the waiver, and it took 6 months to get.

I won't go to a home, I would rather die, options are limited I see death coming sooner rather than later
mbmurray is offline