geoff581
New member
- Joined
- Jul 8, 2016
- Messages
- 9
- Reason
- Loved one DX
- Diagnosis
- 09/2013
- Country
- US
- State
- California
- City
- Irvine
My wife was diagnosed with ALS in 2013 and she will be turning 35 in November. She is now wheelchair bound and has limited used of her arms. Her speech is slurred and she is starting to use other methods to communicate more. We have three kids 10 year twin boys and 6 year old girl. My wife has decided to go on a ventilator when the time comes. She wants to be here as long as she can for the sake of kids. However, lately she has become depressed because she feels that she isn't a "whole" mom who plays with kids, drives them places, and helps care for them. She had a meltdown a few weeks back when one of our boys wanted to help her with lunch. Then this past Monday, she had a meltdown when our daughter was playing with aunts at a 4th of July barebcue.
I try to encourage her the best i can, but I know deep down I will never know completely understand how she is feeling. I want to help her self-estteem and get her to realize that she is a "whole mom" in that sense that can love and be there for our kids despite her body going downhill.
I try to encourage her the best i can, but I know deep down I will never know completely understand how she is feeling. I want to help her self-estteem and get her to realize that she is a "whole mom" in that sense that can love and be there for our kids despite her body going downhill.