- Joined
- May 9, 2016
- Messages
- 1,529
- Reason
- Lost a loved one
- Diagnosis
- 06/2016
- Country
- US
- State
- MN
- City
- Minneapolis
My PALS said he has numbness and tingling in his feet and toes. He legs have just recently become weak enough to get orthotics (getting fitted tomorrow). He still walks without a can or walker. I heard him complain of some of this a few months back, but he said it is getting more intense particularly when he has been on his feet more. I thought this was not generally seen in ALS because these are sensory symptoms?
Anyway, wondering if others have this and how they deal with it. Our next clinic is mid-August so we would have to put a call in to the Dr. to ask about it before then.
Next question, how do PALS here feel about clinics? I have heard some people just do not do them because they seem mostly to document decline. Others feel they are helpful.
Anyway, wondering if others have this and how they deal with it. Our next clinic is mid-August so we would have to put a call in to the Dr. to ask about it before then.
Next question, how do PALS here feel about clinics? I have heard some people just do not do them because they seem mostly to document decline. Others feel they are helpful.