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Old 07-06-2016, 07:23 PM #8 (permalink)
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gooseberry gooseberry is offline
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Join Date: 2014
City: Popopopo
State: All
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,208
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Default Re: Breathing Anxiety

My husband was quite comfortable using his trilogy at night for a long time. He did use anxiety meds but that wss for panic attacks and anxiety he had before his dx. Als made it worse.

I feel Pete is right. You have to decide your course of care. My husband was respiratory onset and walked the day he died so walking isnt necessarily a sign you are not progressing. If using your bipap in the day helps, do it. If meds help, do it. Whatever makes you comfortable. It is different for everyone.
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tripete (07-07-2016)