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Old 07-06-2016, 11:14 AM #2 (permalink)
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Margesmn Margesmn is offline
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Join Date: 2016
City: Minneapolis
State: MN
Country: US
Diagnosed: 11/2015
Interest: I have been diagnosed with ALS.
Posts: 66
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Margesmn Margesmn is offline
New Member
Margesmn's Avatar
Join Date: 2016
City: Minneapolis
State: MN
Country: US
Diagnosed: 11/2015
Interest: I have been diagnosed with ALS.
Posts: 66
Margesmn is on a very distinguished road
Default Re: When did you decide to stop working?

Welcome Brita. I'm sorry you've joined us, but I hope you will find everyone here to be as supportive and helpful as I have.
I was diagnosed in November 2015 also. I quit work in February. I too reached the same point you are at where getting up and getting to work was exhausting. I was fortunate to be able to work from home and as I was able. Is this a possibility for you? I just reached a point where I wanted to be able to spend my time doing what I wanted to do and not working. My job was also stressful and that was a big factor in quitting too. It's not an easy decision. I am married and my husband works so that made the financial decision easier for me. I'm not sure how student loans would be if you are not working. You will qualify for Social Security Disablilty which will kick in 5 months after you quit working. (You can apply the day after your last day of work.) Does your employer offer any short term disability?

Ask lots of questions here and of your doctors and your local ALS chapter.
Wishing you peace in the days ahead.
Margaret
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