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Old 06-29-2016, 07:10 AM #10 (permalink)
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Nikki J Nikki J is offline
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Nikki J Nikki J is offline
Extremely Helpful Member
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Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,538
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Default Re: Trouble in Paradise

Was the 19 years ago behavior a change from before do you think? I understand it was a change in circumstances so may be hard to tell

My mom had dementia with frontal lobe involvement prior to ALS. It was noticeable diagnosed a number of years prior to the ALS but I know now there were some signs before then- things we did not recognize and things we did not know but have been told by her friends.

I would estimate 5 plus years of unrecognized behavior change, 5 of diagnosed dementia and 5 years of ALS/ dementia.

The changes were insidious and there were some hurt feelings and a lot of puzzled moments before we knew what was happening.
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