- Joined
- Jul 25, 2015
- Messages
- 1,606
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- tx
- City
- Dallas
Tripete as usual your words have brought tears to my eyes. You are a very special man Sir. Besty your advice really hit home with me.
This disease makes everyone take a stand in one way or another and all we can do is respect our PALS decisions. I am the first to admit that I don't understand my PALS most of the time but in the big picture does it matter if we understand. We have to support their decisions while trying to maintain our own health and sanity.
Jylnn, I can offer you and your family my thoughts and pray that you have time to show your brother what he means to you and his children. My husband has always been a loner and has very little to say to me or anyone else. I understand the deep sorrow you are feeling right now. My heart is with you. There are no easy answers and just like the progression and symptoms are so different, so is how we all react.
This disease makes everyone take a stand in one way or another and all we can do is respect our PALS decisions. I am the first to admit that I don't understand my PALS most of the time but in the big picture does it matter if we understand. We have to support their decisions while trying to maintain our own health and sanity.
Jylnn, I can offer you and your family my thoughts and pray that you have time to show your brother what he means to you and his children. My husband has always been a loner and has very little to say to me or anyone else. I understand the deep sorrow you are feeling right now. My heart is with you. There are no easy answers and just like the progression and symptoms are so different, so is how we all react.