Paul, I am always tired, it's sucking the life out of me already. I have some help but most of it falls on me. Family doesn't help much, only one of her three daughters do but only after my breakdown. I work full-time and my youngest daughter is unfortunately last right now. My PALS needs me, I am all she has at the moment but I cant take on much more of this disease as it progresses. Horrible disease! Can't get help for care from Medicare, so we pay for adult day care until they wont do it anymore, which is only until 300 pm. I get up early to get her ready and go to bed late to put her to bed, and everything else that needs to be done in between. Yep, I know how it is and this is not even the worst of it yet!