dvjcool
New member
- Joined
- Jun 13, 2016
- Messages
- 7
- Reason
- Loved one DX
- Country
- IND
- State
- somewhere
- City
- somewhere
i everyone
My Dad has been recently diagnosed with possible MND ( its been a little more than a month). As per The Dr. it is currently effecting lower Motor Neurons Only- Both hands majorly. He has problem holding spoon buttoning shirt, lifting arms, using car keys etc. Also there is major loss in hand grip.
As advised by Dr., we carried out EMG. NCV and all blood tests
Only acute Vitamin D deficiency was observed. All other tests were normal. NCV and EMG showed clear signs on Lower Motor Neuron damage in both hands and legs. Also conduction blocks were observed. However The physical affect is limited to both hands only and no affect in legs.
regular dose of vitamin D was started and we were giving him coconut oil massage (its been over a month).
We are still awaiting results of GM1 antibodies test and may take another 15 days.
Amazingly. we have observed some improvement in muscle strength in both hands and also thumb movement.
Earlier he was unable to hold spoon using thumb but now has no problem.
Also the grip of both hand has considerably improved.
Recently we discussed the case with neurophysician but he dismissed the improvement saying it is a normal process. Also, he has mostly ruled out any other disease citing clear patterns in NCV and EMG and his symptoms.
This was really heartbreaking. Should we hope something good may happen or is it a false hope. Please suggest.
My Dad has been recently diagnosed with possible MND ( its been a little more than a month). As per The Dr. it is currently effecting lower Motor Neurons Only- Both hands majorly. He has problem holding spoon buttoning shirt, lifting arms, using car keys etc. Also there is major loss in hand grip.
As advised by Dr., we carried out EMG. NCV and all blood tests
Only acute Vitamin D deficiency was observed. All other tests were normal. NCV and EMG showed clear signs on Lower Motor Neuron damage in both hands and legs. Also conduction blocks were observed. However The physical affect is limited to both hands only and no affect in legs.
regular dose of vitamin D was started and we were giving him coconut oil massage (its been over a month).
We are still awaiting results of GM1 antibodies test and may take another 15 days.
Amazingly. we have observed some improvement in muscle strength in both hands and also thumb movement.
Earlier he was unable to hold spoon using thumb but now has no problem.
Also the grip of both hand has considerably improved.
Recently we discussed the case with neurophysician but he dismissed the improvement saying it is a normal process. Also, he has mostly ruled out any other disease citing clear patterns in NCV and EMG and his symptoms.
This was really heartbreaking. Should we hope something good may happen or is it a false hope. Please suggest.