Thread: Food options
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Old 06-12-2016, 10:01 PM #1 (permalink)
Twitcherama Twitcherama is offline
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Join Date: 2016
City: West Orange
State: New Jersey
Country: US
Diagnosed: 12/2015
Interest: I have been diagnosed with ALS.
Posts: 55
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Twitcherama Twitcherama is offline
New Member
Join Date: 2016
City: West Orange
State: New Jersey
Country: US
Diagnosed: 12/2015
Interest: I have been diagnosed with ALS.
Posts: 55
Twitcherama is on a distinguished road
Default Food options

Howdy all,

I was diagnosed about 6 months ago, but have been having speech troubles since January 2015. It's a slow progressing form, and though I seem to have mostly bulbar issues, my doc says it's not bulbar onset. (I have a touch of weakness in my hands, but otherwise am 'fine'.)

Anyway, I'm having more and more trouble eating. I can swallow fine. I'm careful about it, but have only choked on some water once when someone made me laugh at just the wrong moment. The challenge is eating is soooo slow. I had a hamburger (a big one) at the baseball game the other night. Took me about 6 innings to eat it. Food gets stuck on the roof of my mouth and it takes forever to get it off, etc. Standard stuff, I'm assuming. I'm trying to maintain my weight, but it's a real battle because I don't think I'm getting enough calories. I drink 2-3 Ensure Plus shakes daily, so that helps. I cough all the time when I'm eating, so that makes it even more fun. Bagels are a pain. I can deal with burgers and bratwursts and such if I take it very slow. Cookies are ok! I'm just at my wits end about what to do. I had an omelette today and it still took 45 minutes to eat. I tell people that I don't get full, I get bored.

What do people eat or take to maintain weight and get enough caloric intake?

Thanks. Sorry for a bit of a ramble!

j
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