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Old 06-07-2016, 10:24 PM #5 (permalink)
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♥ lgelb lgelb is offline
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♥ lgelb lgelb is offline
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Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 4,930
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Default Re: Breathing Anxiety

JR,
Have you tried a sip 'n' puff setup? Could use a portable machine from a hip pouch, backpack or attached to a rollator, for example. Just attach a 22mm mouthpiece to your hose. (Or can try a 15mm hose/mouthpiece for less bulk).

Not sure how a trach would help your present situation since you would still be attached to a vent and walking would be more problematic with the stoma. When you are still at the discretionary BiPAP stage, my first move would be to make that easier, and it could potentially last you for a good while.

Best,
Laurie
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