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Old 06-07-2016, 07:25 PM #2 (permalink)
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♥ Nikki J Nikki J is offline
Extremely Helpful Member
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Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 5,655
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Default Re: Breathing Anxiety

What are your respiratory numbers?
What about trying nasal pillows during the day for bipap?
It can happen that bulbar/respiratory people maintain limb use until the end so walking and hospice are not incompatible
I am really sorry you are struggling. As you know anxiety medicine will not really help your breathing although it may calm you a bit
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