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Old 06-07-2016, 07:13 PM #1 (permalink)
jrtriggs jrtriggs is offline
New Member
 
Join Date: 2015
City: Wexford
State: Pa
Country: US
Diagnosed: 09/2014
Interest: I have been diagnosed with ALS.
Posts: 15
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jrtriggs jrtriggs is offline
New Member
Join Date: 2015
City: Wexford
State: Pa
Country: US
Diagnosed: 09/2014
Interest: I have been diagnosed with ALS.
Posts: 15
jrtriggs is on a distinguished road
Default Breathing Anxiety

I have bulbar and was diagnosed 18 months ago at 60. I have no trouble walking or using my arms and have limited use of my hands, but they are still somewhat functional. I can't speak or eat and use a peg. I have been using the trilogy unit at night, but it seems my lungs have recently deteriorated to the point that I need to use my bipap unit during the day. Struggling to breath during the day creates an uncomfortable level of anxiety that I don't know how to fight. It appears I have a few choices, continue to use the bipap during the day or increase my dose of Lorazepam (Ativan) to alleviate the breathing anxiety. I have opted not to go with a tracheotomy, but it seems I am getting pushed in that direction. My doctor says we should call hospice to get things set up. Since I can still walk that seems premature. I'm lost what to do from here. Day and night with a mask doesn't seem like a good option either. Any suggestions?
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