Emg question

[Mw40love]

I am hoping some of you brilliant peeps can point me in the right direction. I have symptoms that are consistent with myasthenia gravis and PLS, weakness beginning in legs 7 years ago, now respiratory muscle weakness, swallowing/speaking issues, fasciculations (not tongue), only able to eat soft foods, etc. Most of these are alleviated somewhat by the Mestinon I am taking, which is also consistent with both dx. All testing, including single fiber emg, say I do not have MG. neuro says, "I don't think you have als" but not, "it is not als". Regular emg and single fiber were called normal. Isn't an emg definitive? Doesn't this mean I don't have als?

 

[KimT]

I think you need to get more information from your neurologist. You deserve answers. If the EMG did not show evidence of ALS, that's the info you need. Then you need to know what the plan is to identify what it is you do have and if your treatment should stay the same or change.

 

[Mw40love]

Thanks! I guess I needed a push to press for more info.