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Old 05-25-2016, 01:23 AM #1 (permalink)
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azwxman azwxman is offline
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Join Date: 2014
City: tucson
State: az
Country: US
Diagnosed: 06/2014
Interest: I have been diagnosed with ALS.
Posts: 147
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azwxman azwxman is offline
Member
azwxman's Avatar
Join Date: 2014
City: tucson
State: az
Country: US
Diagnosed: 06/2014
Interest: I have been diagnosed with ALS.
Posts: 147
azwxman is on a very distinguished road
Default What constitutes 'neglect'?

At the risk of being told to grow a pair, i have to ask about abuse and neglect.
My wife/cals has made it clear that she hates taking care of me. I try to ask politely when i need something and i always wait patiently while waiting for her to get to my requesr...or i at least ACT patient. I tell her thanks very regularly, and try to let her know that i appreciate her and what she does.
I will add here that we recently adopted a 2 year old (my granddaughter), and i honestly am unable to help around the house, so her playe is full.
To top it off, shes had a sinus infection for about a week, so shes tired and feels lousy.
Now, we have home health aides 2 hours per day, 7 days a week plus she has respite help with the baby.
So, tonight she gave me my meds (PEG) and put the hoyer sling in my power chair while i stood at the sink. Once the sling was ready i sat and tried to get my feet onto the foot rest. Not an easy job these days as many of you are aware. Well, apparently i "dawdled" too long. She told me she would not get me into bed...i can spend the night in my chair. And she went to bed.
So, long story to ask: what is neglect and abuse? As i mentioned, this treatment is not one-off; its happening more and its escalating.
And back to my "pair":i have 'em but i am helpless here, other than having my phone to talk to you or call the athorities. She wins any disagreement because i cant do anything about it.
When do i say enough?
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