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Old 09-08-2004, 10:34 AM #16 (permalink)
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Carol Deboer Carol Deboer is offline
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Carol Deboer Carol Deboer is offline
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Join Date: 2003
Posts: 345
Carol Deboer is an unknown quantity at this point
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Hi Guys,

Drop out of the sky! Henry went skydiving, and he said it was the most exciting thing . I however, do not see any enjoyment out of falling face first to the earth at earthshattering speeds, not knowing if your shute will open or if you will land on the side of a house or a parked rock....But, to each their own. Al, do it. If you have the desire to do it, do it. And do it now. We know how fast things can change each and every day. How are you Al? We were away most of the summer too. Up at the trailer. I walked all the trails Fisher, I was looking for you! I know you probably did not recognize me looking like a freak of wildlife and all ha... Anyway, how are you? Are you still able to get out? It does get more and more difficult doesn't it. I know we plan every little thing now. Henry too, is getting weaker and weaker, his voice is still there but is weak and we really have to listen to his words. Some days he is good, and some, well you know the story. Jane, how are you doing? How is your sis? Is she still on her own? I know the story with the Insurance can be a bit old pain in the ass, however, do not tick them off too much. Henry is on Disability Pension, and since he was self emplyed, does not have work benefits. He is covered under my health plan at work, and the government has been great. We really have had no problems. I think you should see if she could get coverage from her local CCAC, and I'm sure there is some one at your local social service offices that will help you with her CPP, or Disability Pension. Get these wheels in motion now, it may take some time. Most of your drugs should be covered. Henry has had little or no troulble with his feeding tube. The tube was pulled out about 2 inches by accident when he was being lifted, and we had to lay him on the bed and manually insert it back into him. Ouch! He was really good about it. I find when flushing, when you hold the syringe flat to the body, it takes a better push, when you hold the syringe upright more it seems to go better. That has been our discovery. An easy steady push too, do not force it, it should not have to be forced. Coke, yeah, things go better with Coke. Yeah, right. Als and Coke! Who ever would have thunk?!Well, Hello to all, We are just plugging along here, I am working and trying to keep everything running smoothly, and we are still smiling and hoping and praying for a cure. Stay Strong Everyone. Love to all....

Carol D. xoxo
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