kisy
New member
- Joined
- Jan 30, 2016
- Messages
- 4
- Reason
- Learn about ALS
- Country
- uK
- State
- Scotland
- City
- Glasgow
I'm almost 33, female, mother of 4. Two years ago (march '14) I had a 'neuro event', where I had electric shock sensation through my body, slurred speech, lost balance, then left leg would collapse when I tried to walk. My left calf felt like it was buzzing, half of my right calf felt the same. The buzzing moved up my left leg to my thigh and never left. the rest of the neuro symptoms went away and I was left with a collapsing left leg and a thigh that left like the muscle were constantly rippling (wasn't visible).
I went to a&e, they did a ct scan and lumbar puncture. both clear. found to have b12 deficiency and started injections.
As time went on, my leg became stronger and it stopped collapsing about 6 months later (very occasionally would feel weak). The sensory symptoms continued in my thigh and actually intensified. There was an area the size of my thumbprint that if i pressed (gently) would increase sensory stuff in the whole thigh. by the december '14 it had passed the uncomfortable stage to the pain stage. my whole thigh was cramping and no stretches would help.
i was sent for an mri of head and neck in july(??) '14 and saw a neuro in the weeks after. No lesions found on mri. Diagnosis of functional neurological disorder. I asked whether it could be from b12 deficiency, but 'the level of damage needed for my symptoms would be visible on head and neck mri' apparently. I asked for emg on my leg, he said he would request test, 'if only to put my mind at ease and accept diagnosis' he said nothing would show up, but if it did, i would see him again.
I finally get emg on leg in Jan '15. This showed 'evidence of nerve repair' and received letter from near saying 'it was probably from an old injury, see ya!'. I finally got an appointment with him, only for him to tell me to leave because i wanted further tests, as 3 GPs had said i needed an mri of lower back. He eventually referred me to another neuro and i saw her in dec '15, who arranged mri of lumbar spine in jan '16
***sorry this is taking so long***
bulging disc at l4, but no nerve compression. found to be vitamin d and folate deficient, treatment started. i have another appointment with her in june
My left thigh has continued to increase in pain and twitching of the muscles. It is constantly tight and in the very few times it is relaxed (after a hot bath for example) it feels like i am missing a massive chunk of muscle. it's really difficult to describe. it will collapse on itself.
in jan this year i went to the doctor because i felt like i had something stuck in my throat. he couldn't see anything. it's never gone away and the last few weeks i have had sudden 'attacks' of speaking like i'm losing my voice and like i have to cough to clear my throat. it lasts maybe an hour and then i go back to normal.
ok, so, i'd better add my 'atrophy' photos.
I went to a&e, they did a ct scan and lumbar puncture. both clear. found to have b12 deficiency and started injections.
As time went on, my leg became stronger and it stopped collapsing about 6 months later (very occasionally would feel weak). The sensory symptoms continued in my thigh and actually intensified. There was an area the size of my thumbprint that if i pressed (gently) would increase sensory stuff in the whole thigh. by the december '14 it had passed the uncomfortable stage to the pain stage. my whole thigh was cramping and no stretches would help.
i was sent for an mri of head and neck in july(??) '14 and saw a neuro in the weeks after. No lesions found on mri. Diagnosis of functional neurological disorder. I asked whether it could be from b12 deficiency, but 'the level of damage needed for my symptoms would be visible on head and neck mri' apparently. I asked for emg on my leg, he said he would request test, 'if only to put my mind at ease and accept diagnosis' he said nothing would show up, but if it did, i would see him again.
I finally get emg on leg in Jan '15. This showed 'evidence of nerve repair' and received letter from near saying 'it was probably from an old injury, see ya!'. I finally got an appointment with him, only for him to tell me to leave because i wanted further tests, as 3 GPs had said i needed an mri of lower back. He eventually referred me to another neuro and i saw her in dec '15, who arranged mri of lumbar spine in jan '16
***sorry this is taking so long***
bulging disc at l4, but no nerve compression. found to be vitamin d and folate deficient, treatment started. i have another appointment with her in june
My left thigh has continued to increase in pain and twitching of the muscles. It is constantly tight and in the very few times it is relaxed (after a hot bath for example) it feels like i am missing a massive chunk of muscle. it's really difficult to describe. it will collapse on itself.
in jan this year i went to the doctor because i felt like i had something stuck in my throat. he couldn't see anything. it's never gone away and the last few weeks i have had sudden 'attacks' of speaking like i'm losing my voice and like i have to cough to clear my throat. it lasts maybe an hour and then i go back to normal.
ok, so, i'd better add my 'atrophy' photos.