hi steve
sorry about short reply earlier,im not doing too well at the moment and got alot on my mind. i thought about what you said about your mum,she has just got a terminal diagnosed and will panic and may be in denial but letting her know that you are there to talk to when shes ready is the best thing you can do for now.im not in denial anymore but my son and family are. i dont tell them much about whats going on, when i do they just clam up and pretend everythings ok so i keep it all to myself .how old is your mum?.i became ill at 32,i had a job i loved,full active life always fit and healthy. first few yrs i went down hill fast then stabilized a bit a few yrs then 14 mths ago i started to deteriorate again,im now 40 limited mobility,speach and especially swallowing/respitory is getting worse.
i think the best support to give is emotional over practical, doing practical things does help but emotional support is the most important. have you told her about forum?
reading about people going through the same as she is could help, if shes not ready just mention little points about people here and what they say to get her interested.
this site is a lifeline to all who suffer mnd and gives us a place to voice/vent /pour out our concerns,your mum may find its easier to talk to people on here. im here to talk to when shes ready.
best wishes to you and family
caroline