fionae
Distinguished member
- Joined
- May 30, 2015
- Messages
- 240
- Reason
- PALS
- Diagnosis
- 08/2015
- Country
- US
- State
- CA
- City
- San Diego
I speak only for myself, and am on new medication that I am trying to
Get used to, that
makes me very groogy, and affects my clarity of thought.
And please excuse typos and typing style problems, if you may,
I am drawn to this post unfortunately,
When I can tell I should be avoiding it.
A few random feelings I am getting from this thread. In no particular order,
Just summoned up the best I can considering the circumstances of the med.
They are valid and legitimate for me, perhaps not for anyone
else.
- I feel that semi character assassinations are occurring in some
Of these posts .
- I feel that an extremely small number of posters here are being hypocritical.
- I feel that every single member of the forum is a Unique Individual, each with own
Particular exact form of ALS, and own unique symptoms and progression.
I also feel each has his/her own unique personality, coping techniques, life story, circumstances
which they are living under, while struggling in the battle of a lifetime.
- I feel persons here are being attacked because they may not post in the way OTHERS see fit.
- I Feel I have always had a respect for the GROUP of us, pulled together through
this monstrous adversity we are trying to deal with. At least I've done the best I
can in that aspect.
While I may not always agree with somrthing someone says, or while I
personally may have difficulty seeing where they are coming from, I respect, and or try
to respect, that that is their own unique viewpoint, and is as valid as anyone else's.
I am sure I have fallen down in places.
- everyone deals with this disease in their own way. Each member expresses themselves
In their own way. Each and every member contributes something meaningful to this
Forum, whether it be knowledge, caring, support, helpfulness, or raising questions to ponder, or asking
For advice re ALS symptoms and problems, or providing answers to those questions.
Each person's input is valuable.
Maybe they don't always hit the nail right on the head.
Maybe they sometimes fall short. Both in regards to what they would hope for themselves to
be expressing, as well as how other members see their post.
- are we all to be robots with one approved style of posting?
- are some of less less valuable than others because of how we "share" our
experience of having a terminal disease?
- are we to examine, and re-examine each post we write to be sure it fits
The proscribed formula?
- I don't know what's going on here in this thread, but I personally
come away with a sense of people being judged, people being criticized,
People accusing other people of things, just because they post a certain way.
- I personally see a tearing apArt of the fabric of the forum here.
- we are all dying. Or desperately doing our best to care for a loved one
who is dying, from this wretched disease. Why the criticism against others for
Whatever way they are able to communicate in light of this desperation?
- I feel a true sadness at what just some of the posters are saying here.
- unfortunately, just some of what has been said here has had the effect of my
Feeling a sense of dismay, and bitterness.
And, it is no ones fault but my own, but it was after reading some of the
Permeating sentiment in this thread that I made an ugly remark in the DIHALS
Section. I take full responsibility.
It is no ones fault but my own.
- I know I have more thoughts on what's happening here, but I have rambled on far too
Long, and know I've bn repetitive, and have beaten my opinions into the ground.
I accept full responsibility for the wandering and off track style of this post, but I would like
to at least say as well, I feel some of this is due to the disjointed ness and grogginess my new med is causing me to have.
But it is still my own responsibility.
I lay myself open and vulnerable to all attacks.
Go for the throat.(Unfortunately, in my humble opinion, that's what an exceedingly small numberof the posters are doing here.)
I will not fight back.
I have surrendered a long time ago.
In sadness, disappointment, and confusion
To see how this thread has been unfolding.
Laura.
Get used to, that
makes me very groogy, and affects my clarity of thought.
And please excuse typos and typing style problems, if you may,
I am drawn to this post unfortunately,
When I can tell I should be avoiding it.
A few random feelings I am getting from this thread. In no particular order,
Just summoned up the best I can considering the circumstances of the med.
They are valid and legitimate for me, perhaps not for anyone
else.
- I feel that semi character assassinations are occurring in some
Of these posts .
- I feel that an extremely small number of posters here are being hypocritical.
- I feel that every single member of the forum is a Unique Individual, each with own
Particular exact form of ALS, and own unique symptoms and progression.
I also feel each has his/her own unique personality, coping techniques, life story, circumstances
which they are living under, while struggling in the battle of a lifetime.
- I feel persons here are being attacked because they may not post in the way OTHERS see fit.
- I Feel I have always had a respect for the GROUP of us, pulled together through
this monstrous adversity we are trying to deal with. At least I've done the best I
can in that aspect.
While I may not always agree with somrthing someone says, or while I
personally may have difficulty seeing where they are coming from, I respect, and or try
to respect, that that is their own unique viewpoint, and is as valid as anyone else's.
I am sure I have fallen down in places.
- everyone deals with this disease in their own way. Each member expresses themselves
In their own way. Each and every member contributes something meaningful to this
Forum, whether it be knowledge, caring, support, helpfulness, or raising questions to ponder, or asking
For advice re ALS symptoms and problems, or providing answers to those questions.
Each person's input is valuable.
Maybe they don't always hit the nail right on the head.
Maybe they sometimes fall short. Both in regards to what they would hope for themselves to
be expressing, as well as how other members see their post.
- are we all to be robots with one approved style of posting?
- are some of less less valuable than others because of how we "share" our
experience of having a terminal disease?
- are we to examine, and re-examine each post we write to be sure it fits
The proscribed formula?
- I don't know what's going on here in this thread, but I personally
come away with a sense of people being judged, people being criticized,
People accusing other people of things, just because they post a certain way.
- I personally see a tearing apArt of the fabric of the forum here.
- we are all dying. Or desperately doing our best to care for a loved one
who is dying, from this wretched disease. Why the criticism against others for
Whatever way they are able to communicate in light of this desperation?
- I feel a true sadness at what just some of the posters are saying here.
- unfortunately, just some of what has been said here has had the effect of my
Feeling a sense of dismay, and bitterness.
And, it is no ones fault but my own, but it was after reading some of the
Permeating sentiment in this thread that I made an ugly remark in the DIHALS
Section. I take full responsibility.
It is no ones fault but my own.
- I know I have more thoughts on what's happening here, but I have rambled on far too
Long, and know I've bn repetitive, and have beaten my opinions into the ground.
I accept full responsibility for the wandering and off track style of this post, but I would like
to at least say as well, I feel some of this is due to the disjointed ness and grogginess my new med is causing me to have.
But it is still my own responsibility.
I lay myself open and vulnerable to all attacks.
Go for the throat.(Unfortunately, in my humble opinion, that's what an exceedingly small numberof the posters are doing here.)
I will not fight back.
I have surrendered a long time ago.
In sadness, disappointment, and confusion
To see how this thread has been unfolding.
Laura.