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Old 08-30-2004, 04:10 PM #9 (permalink)
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Posts: 6
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Hi Kay

I helped care for my mother who passed in January. We had a motto that we would take one day at a time, it helped for her and us not to feel to overwhelmed about what might happen tomorrow. She died 2 years after diagnosis with limb onset. She never wanted a feeding tube so I can't help you with that, but she was totally dependent with no use of any of her limbs for her last 4 months. Her doctor was a big help with much of the paper work, and we had an O.T. come in to help with massage for circulation.

Sincerely Jane
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