BlueandGold
Senior member
- Joined
- Feb 28, 2015
- Messages
- 634
- Reason
- PALS
- Diagnosis
- 04/2015
- Country
- US
- State
- WV
- City
- Sandyville
Katie I can really relate to where your husband is. I too am down to 129lbs but, the Peg Tube has helped so much with making sure I am hydrated and with taking meds and the supplemental formulas (which taste like sh*t) so glad they go down the tube. My primary doc also gave me an appetite stimulant called megace which has improved my appetite. I believe my FVC is lower than his but I do have the Trilogy and Laurie is helping me to get the right settings.
Him losing weight WILL hasten his progression and if he wants to stay out of that wheelchair he needs to consider the tube. Never give up.
Vince
Him losing weight WILL hasten his progression and if he wants to stay out of that wheelchair he needs to consider the tube. Never give up.
Vince